Category: Avleigh’s Journey
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Success
Today Avleigh has a trial run for a Baclofen Pump. Baclofen is the medicine that she receives by pill to help with her high tone and spasticity. Yes, our baby that has restrictions and can receive nothing by mouth is prescribed a pill because her insurance will not cover it to be compounded. We’ve been…
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Holidays
It’s the time of year that we all should be cherishing each other, giving to others and being cheerful. It’s time to sit back and truly take in what the holiday season is meant to be about… celebration of life. We love each day very fast day to day, often forgetting or running out of…
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From the Eyes of a 5 Year Old
My favorite thing about Avleigh is she’s so sweet and small. I think she’s awesome and love that she’s my sister. I don’t care if she cry’s on me because I will make her happy. I like to play Simon Says with her. It was cool that she came in my classroom. I told my…
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Broken
I read an article this week that was shared with our PCH group that really got me thinking. It’s about a toddler that had a glow stick straight out of the pack. An older child took the glow stick from the toddler. Just as the mom was about to fuss the older child cracked the…
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Motility
Well today was a pretty long day. We got up early this morning to head out to Children’s for Avleigh’s Motility Test. This test is designed to monitor the contractions of the stomach through the intestines. Of course, we were scheduled to do this test because we had suspicions that it wasn’t functioning properly due…
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Liebster Award 2017
Avleigh’s Journey has been nominated for a Liebster Award! Thanks To Teeny and the Bee for nominating us!! Bloggers are nominated by their peers. Once they are nominated, they look for blogs that speak to them and have less than 200 readers per month, then they nominate those bloggers – paying it forward. Upon nomination,…
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The Rough Ride
I’m very overdue on giving everyone an update on Avleigh. We have had a very rough few months and I’ve been trying to wait to give a full update until I knew a little more of what was going on. So where do I begin… About 4 months ago Avleigh was doing really well recovering…
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The Good, Bad and Ugly
I think most people can agree that Avleigh is a very happy child. It’s not often that you will see her upset. When she cries it’s either a way of her communicating that she doesn’t want something, she’s tired, she’s hungry or she’s hurting. Through time those closest in her life have learned her communications…
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Emotions
It has been a very long time since I’ve updated everyone on Avleigh’s Journey. It’s been a very emotional and stressful few months to say the least. We have had studies, appointments, surgeries and although most have been positive and successful, we are continually facing many difficulties. As in our human nature, these difficulties make…
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Hope
Hope is an optimistic attitude of mind that is based on an expectation of positive outcomes. Hope is what keeps us going but then after so long of our expectations not being met we begin to settle and accept things as they are. This is the same as what we have begun doing with Avleigh.…
Avleigh's Journey 