Category: Avleigh’s Journey
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The Waves of Losing a Child
No parent should ever experience the loss of a child. It is just not in the natural rhythm of our being. We are mentally programmed into the belief that we will raise our children, see them graduate from kindergarten, graduate from high school, get married, have children, and as you get old you will admire…
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Transfer Day
Deciding to adopt an embryo is a very exciting process. Once we got to the point of preparing our cycle for the transfer is when things really got real! You hear stories of IVF journeys and how much medicine and injections it takes to prepare the body to accept the science behind this little miracle.…
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Birthday Wishes
March 10, 2014 you made your arrival into this world with that beautiful face, brown eyes, and long eyelashes. Through those challenging years of working through your rare disease, you showed us kindness, laughter and faith. We had six beautiful years celebrating your life, that I will cherish in my heart forever. As those numbers…
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Emptiness
I’ve been a special needs mom for the last 6 years. Six years of waking up throughout the nights, early mornings, diaper changes, feedings, vomit, moving her sweet little body from one spot to another just to keep her satisfied, constantly checking up on her to make sure she’s was ok, she was not choking,…
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Comfort
I’m about to move outside of my comfort zone and get real with everyone. This will probably be one of the hardest blogs that I ever write, up to now at least. These past few weeks have been the worst weeks of my life. As most of you know from her Facebook group, it all…
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The Journey
We’ve had many battles over the years but they always had some type of plan for treatment. Whether it was medicine, equipment or a procedure, there were ways for us to manage whatever symptoms Avleigh was experiencing to get her the quality of life we always strived to provide for her. We just want her…
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When Happiness Over Powers Medical
It’s been a while since I’ve written here. It’s not because things have been all peachy or because all of Avleigh’s medical complications have minimized. It has been because I have been choosing to take some time for us and to focus publicly on her happiness. The last few months she has been an extremely…
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Challenges
Avleigh’s tonsillectomy was much smoother than we could have imagined. She did amazing through the surgery, even with her blood disease, and made us feel like we worried over all these little things for nothing. She tolerated this surgery better than any other. She was content, actually even prefers to rest on her own than…
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The Backup Plan
I’ve broken the news about our possible miracle with the stem cell treatment, but what happens if we decide it’s not the bet plan of action? Or what if we go through with it and it doesn’t work? We are continuing to work through her follow-ups and communication with her medical team as if the…
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New Hope
I can remember the day we received Avleigh’s diagnosis like it was yesterday. One statement that was made stuck with me… “I’m sorry for your loss”. In other words they were telling us there was nothing they can do for her. There are no cures and no treatments. Just a matter of managing symptoms. I…
Avleigh's Journey 