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Epilepsy
The first year of Avleigh seeing a neurologist they would always ask about seizures. Our answers were always “no, she doesn’t have them”. Without seeing the signs of the common types of seizures we were certain that she didn’t experience that. Throughout her second year we became more educated on the types of seizures and…
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Avleigh and PCH2D
Avleigh was diagnosed with the rare disease Pontocerebellar Hypoplasia Type 2 at the age of 2 years old. Even more rare is the gene that is affected giving her subtype D. We have yet to find another child still alive with this subtype to help give us an idea of what Avleigh’s future holds. In…
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The Life of Avleigh
We fill Avleigh’s Journey page with beautiful pictures and videos of her good moments and best accomplishments. We are very proud of all those moments as much as she is of herself. What isn’t always explained is these accomplishments aren’t always continual. I spent some time recently looking though old photos and videos. Not sure…
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Being a Special Needs Mom
I like to think that I’m a “normal” mom just like any other. We live life at a fast pace to get from one event to the other while trying to still feed our girls somewhat nutritional meals with the little time we have far and inbetween. We play together, have our silly moments and…
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Bad Luck
Is there a such thing as bad luck? Or even a such thing as luck itself? People often look at their situation and immediately see the things going wrong. I got a flat tire today, my lunch order got mixed up, I could go on and on. But what about what went right? I made…
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Avleigh’s Story
Avleigh is a very smart, confident, determined and beautiful 2 1/2 year old little girl. On her 2nd birthday she was diagnosed with Pontocerebellar Hypoplasia Type 2D. This is a very rare disorder that she will have to battle the rest of her life. It gives her limitations on both motor and communicative skills. This…
Avleigh's Journey
Why fit in when you're born to stand out -Dr. Seuss
Avleigh's Journey 