Avleigh's Journey

Well today was a pretty long day. We got up early this morning to head out to Children’s for Avleigh’s Motility Test. This test is designed to monitor the contractions of the stomach through the intestines. Of course, we were scheduled to do this test because we had suspicions that it wasn’t functioning properly due…

Avleigh’s Journey has been nominated for a Liebster Award! Thanks To Teeny and the Bee for nominating us!! Bloggers are nominated by their peers. Once they are nominated, they look for blogs that speak to them and have less than 200 readers per month, then they nominate those bloggers – paying it forward. Upon nomination,…

I’m very overdue on giving everyone an update on Avleigh. We have had a very rough few months and I’ve been trying to wait to give a full update until I knew a little more of what was going on. So where do I begin… About 4 months ago Avleigh was doing really well recovering…

I think most people can agree that Avleigh is a very happy child. It’s not often that you will see her upset. When she cries it’s either a way of her communicating that she doesn’t want something, she’s tired, she’s hungry or she’s hurting. Through time those closest in her life have learned her communications…

It has been a very long time since I’ve updated everyone on Avleigh’s Journey. It’s been a very emotional and stressful few months to say the least. We have had studies, appointments, surgeries and although most have been positive and successful, we are continually facing many difficulties. As in our human nature, these difficulties make…

Hope is an optimistic attitude of mind that is based on an expectation of positive outcomes. Hope is what keeps us going but then after so long of our expectations not being met we begin to settle and accept things as they are. This is the same as what we have begun doing with Avleigh.…

Things had been going fairly well for our Avleigh since she had her g-tube placed. She gained two pounds, has more energy and able to sit for a few minutes unassisted. All these things made us feel like we were going strong and reassured us that we had indeed made the right decision in giving…

Life is full of decisions. Our decisions for Avleigh used to be simple. We would do whatever was best for her based on our own opinion, guidance from her specialists and our support team. But what happens when we get to the point where not everyone agrees on the same plan. How do we know…

We all have goals for our little ones. For some it’s what they will be when they grow up or what sports they will master. For us it’s quality of life vs quantity of life. This was our main subject at Avleigh’s appointments today.  It all started out with the gastrologist. Although her blotted tummy…